April 25, 2025
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Disability in Health Care Reporting Fellow
STAT’s illustrious biotech podcast, “The Readout LOUD,” published its 350th episode on Thursday! If you’ve never listened, now’s the perfect time to tune in. Alison, Adam and Elaine sing at the top of the pod. I heard they might get nominated for a Tony Award for the performance???

TRUMP

[Nearly] 100 days later in science and health…

Chip Somodevilla/Getty Images

If you read this newsletter, I feel comfortable assuming that you have also struggled to follow the head-spinning series of events that have occurred in federal health agencies since President Donald Trump took office in January. We here at STAT definitely have! 

So, as we approach the 100-day mark, we are taking stock with a special report that elucidates how the partnership between the NIH and academia has crumbled, and examines the toll this has taken on five individuals. We’ve also put together a thorough timeline that illustrates the breadth of executive orders, legal actions and funding cuts that have defined the year's first quarter.

A new STAT analysis by Megan Molteni, Emory Parker and Jonathan Wosen shows that the NIH has scaled back its awards of new grants by at least $2.3 billion since the beginning of the year — coming on top of threats to freeze billions of dollars of NIH funding to specific universities as well as abrupt terminations to hundreds research projects targeted by Trump’s political agenda. Read the analysis and check out Emory’s stunning charts and graphs here

The human toll of these cuts — the thousands of personal tragedies playing out across the country, far beyond the NIH’s Maryland campus — is incalculable, but these five stories illustrate the trauma that people are weathering as labs go dark and careers evaporate overnight. Angus Chen, Jonathan Wosen and Usha Lee McFarling did an incredible job capturing the heartbreak of this moment. And be sure to take a look at the timeline, compiled by Usha and given a snazzy design by Julia Bujalski. 

What a mighty project!


AUTISM

HHS axes autism registry

The federal health department is not creating a new autism registry, an official told STAT on Thursday. Instead, the Department of Health and Human Services will launch a $50 million research effort to improve treatments and understand the causes of the condition.

The news arrives after a couple of days of bedlam in the autism community. National Institutes of Health Director Jay Bhattacharya announced Tuesday the intent to create a registry at an all staff meeting. Much of the fear centered around his remarks that the government would pull health data from private sources, even wearables like smart watches and fitness trackers. Many autistic people worried it presaged dark days ahead. 

Instead, the HHS has reversed course. It’s unclear what this new $50 million research initiative will look like, but stay tuned. We’ll have the scoop when more details emerge.


VACCINES

CDC finally does its job

In a new report on Thursday, the Centers for Disease Control and Prevention stressed that increasing measles vaccination coverage is essential to ending the outbreaks currently underway in the country and preventing new ones. That message is exactly what one would expect from the public health agency, but one that the CDC hasn’t often been given the chance to voice since Robert F. Kennedy Jr., an avowed critic of vaccines, was confirmed as Health and Human Services secretary earlier this year. Kennedy stresses that getting vaccinated is a matter of personal choice.

Of the 800 confirmed cases that were reported up to April 17, 654 or 82% have been associated with a large and ongoing outbreak that began in West Texas and has since spread to New Mexico, Oklahoma, and possibly Kansas, as well as across the border into Mexico. There have been three confirmed deaths associated with that outbreak, marking the first time in over 20 years that the country has experienced multiple measles deaths in a single year. The report is in CDC’s Morbidity and Mortality Weekly Report. – Helen Branswell



PROTEST

“RFK is not OK”

A packed and deeply divided audience at the Rx and Illicit Drug Summit applauded and interrupted the health secretary Robert F. Kennedy Jr. in equal measure as he spoke Thursday about his experience with addiction, 12-step recovery, and other topics. 

Protesters attempted to shout him down or carried signs opposing various Kennedy stances. One person carried a small “cuts kill” sign and screamed “RFK is not OK” as he was ushered out. Another yelled “respect science!” Still another protester yelled, simply, “f— you.”

The atmosphere at the weeklong conference has been charged and contentious. Still, it was clear Kennedy enjoyed substantial support among many of the conference’s attendees. For more event details, check out STAT’s Lev Facher story.


WHIPLASH

Funding for women’s health study won’t be reduced after all

On Monday, the groundbreaking Women’s Health Initiative announced that the federal government was ending contracts for the study's 40 regional centers at the end of the fiscal year. On Thursday, a federal official said the Department of Health and Human Services was reversing that decision, based on new National Institutes of Health budget numbers.

One of the largest research projects in women’s health, the WHI has shaped treatment of menopause, osteoporosis, and nutrition — the program enrolled more than 161,000 women at its height in 2005. It's not clear whether the latest funding message means funds are fully or partially restored. JoAnn Manson, one of the long-term principal investigators of the WHI at Brigham and Women’s Hospital, was cautious but hopeful while awaiting confirmation from NIH late Thursday.

“This ground-breaking study has so much more to offer to advance women’s health and the health of all older adults,” she told STAT. “It’s exciting that the study’s lifesaving discoveries can continue.” Read STAT's Elizabeth Cooley update here.


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What we're reading

  • They caught the flu, and never came home, New York Times
  • Pentagon to resume medical care for transgender troops, Politico
  • NIH cuts will set back research into the rare disease that has terrorized my family, STAT
  •  Norway launches scheme to lure top researchers away from US universities, The Guardian